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FAQ

Do I have to pay for prescriptions?

You do not have to pay for any disease modifying therapy that you are prescribed, for example Tecfidera, Aubagio, Gilenya or injectable therapy or infusions. However, if you are prescribed medication to treat symptoms you will need to pay for your prescription unless you have an exemption certificate for example for another medical condition such as diabetes. If you are prescribed more than one symptom control medication you may decide to buy a pre payment certificate. You can find more information about this at: https://www.gov.uk/get-a-ppc

We advice people with MS to have the flu vaccination as long as it is not a live vaccination. Live vaccination may trigger a relapse. If you require a vaccination for travel purposes always ask if it is a live vaccination before going ahead and check with your MS team.

Having MS does not mean that you cannot have a family. There may need to be more planning especially if you are being treated with a disease modifying therapy or the choice of disease modifying therapy may need close consideration if you are planning a therapy when you are diagnosed.

If you feel that you are developing symptoms that may be MS related you should contact your MS Specialist Nurse. If the MS team feel that the symptoms you describe are not MS related they will direct you back to your GP.

Low vitamin D levels have been linked with an increased risk of getting MS, but also with more frequent relapses and increased disability in those with established MS. There are several clinical trials ongoing at the moment to see what doses are appropriate and safe. The UK Scientific Advisory Committee on Nutrition has recently set recommended dietary intakes for vitamin D for the first time. These can come from your general diet or from supplements. Everyone in the general population aged 4 and over should have 10 micrograms of vitamin D per day, throughout the year. 10 micrograms is equivalent to 400IU. If you are actually found to be deficient in vitamin D, then your doctor may recommend a supplement of 2000-5000 IU. Your MS Consultant will advise you.